Free Ebook The Official Patient Sourcebook on Von Hippel-Lindau Disease A Revised and Updated Directory for the Internet Age
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This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to von hippel-lindau disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on von hippel-lindau disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Von Hippel-Lindau Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Von Hippel-Lindau Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Von Hippel-Lindau Disease; Chapter 5. Books on Von Hippel-Lindau Disease; Chapter 6. Periodicals and News on Von Hippel-Lindau Disease; Chapter 7. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Rights and Insurance; ONLINE GLOSSARIES; VON HIPPEL-LINDAU DISEASE GLOSSARY; INDEX. Related topics include: Angioblastomatosis, Angiomatosis Retinae, Angiophakomatosis retinae et cerebelli, Cerebelloretinal hemangioblastomatosis, Cerebelloretinal hemangioblastomato-sis, Hippel Disease, Hippel-Lindau Syndrome, Lindau Disease, Retinocerebellar Angiomatosis.
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